Some of our youngest patients are not even born yet. They have been found through prenatal screening to have medical problems which are incurable and may lead to death before or shortly after birth.
Many parents choose to continue their pregnancies after a serious prenatal diagnosis. The Elizabeth Hospice offers a comprehensive Perinatal Program which includes birth planning, emotional support for the siblings and family before and after birth and concurrent hospice care for the newborn at home afterwards. Whether the parents choose to undertake treatment for their newborn’s serious medical condition or elect comfort care only, our dedicated children’s team is there throughout the process, providing support and choices based upon the family’s values and goals of care.
Perinatal care is appropriate for a wide range of life-limiting conditions including anencephaly, Trisomy 13, Trisomy 18, Potter’s syndrome, severe heart defects, chronic respiratory problems, genetic and metabolic conditions, and many others.
This program is offered at no cost to families.
Hospice service is an elected benefit of most insurance plans, including Medicare, Medi-Cal, Tricare and the VA. This coverage includes clinical staff visits, medications for symptom management and home care equipment and supplies related to the terminal illness. After meeting with you and discussing your goals, values and needs, we will verify your insurance benefits to determine your hospice coverage. If you do not have insurance, our social workers will help you and your family identify other funding options. Most insurance companies provide concurrent care for children including disease-directed treatment and simultaneous hospice services. No child is turned away who needs service.
Advance Care Planning
Advance Care Planning is making decisions about the care a person wants to receive when he or she is unable to communicate those wishes directly. If you are the parent or guardian of a child with a life-limiting medical condition, a conversation with your provider about advanced care planning will arm you with helpful information, allowing you to make the best choices for your child at every step of the way. Get ideas on how to facilitate this discussion here:
As a 501(c)(3) nonprofit organization, The Elizabeth Hospice is committed to ensuring that perinatal care is available to all in need. This important work is only possible through the generosity of people like you. Please consider making a gift today that will provide these vital services to our community.