Specialized Pediatric Care
Our specialized team works of pediatric providers works in concert with the child’s pediatrician and specialists to ease symptoms, manage pain, and make the most of every day. Through educational and support programs, parents are given the tools to confidently care for their child at home with our care team available to provide guidance every step of the way .
Care is available for any child facing a life-limiting illness, even those who continue to receive life-extending treatment. The diagnoses for pediatric hospice care include: cancer, heart condition, lung disease, neurological disorder, premature birth, and more. Pediatric hospice care can begin as soon as a diagnosis is made and be provided throughout treatment until the final moments of life.
Our services include:
- Expert pain management
- Relief from other distressing symptoms
- Coordination of care with the child’s primary medical team
- Support for siblings, parents and the extended family
- Expressive therapies (art, music, etc.) geared to a child’s developmental and emotional needs
- Assistance with practical life issues and counseling
- On-call support 24 hours a day, 7 days a week
- Spiritual and emotional support
- Grief and bereavement support
We know there is no place better for you and your child than to be at home, surrounded by the people and things your child loves. We will partner with your child’s school to keep life as normal as possible there, too. If a hospital visit becomes necessary, we will stay involved to ensure continuity of care for you and your family.
Perinatal Hospice Care
Perinatal hospice care is for parents who choose to continue their pregnancies after a prenatal diagnosis that their baby has a life-limiting condition and may die before or shortly after birth. The Elizabeth Hospice offers a comprehensive program of care which includes birth planning, emotional support for the family before and after the birth, and traditional hospice care for the infant at home after the birth.
Perinatal hospice care is appropriate for a wide range of life-limiting conditions, including: anencephaly, Trisomy 13, Trisomy 18, Potter’s syndrome, severe heart defects, congenital diaphragmatic hernia, and others.
Hospice is an elected benefit of most insurance plans, including Medicare, Medi-Cal and the VA. This coverage includes clinical staff visits, medications, and home equipment and supplies related to the terminal illness. After meeting with you and discussing your needs, we’ll verify your insurance benefits to determine your hospice coverage. If you do not have insurance, our social workers will help you and your family identify other funding options.
Advance Care Planning
Advance Care Planning is making decisions about the care a person wants to receive when he or she is unable to communicate those wishes directly. As a parent or guardian of a child with a life-limiting condition, we recommend that you have an advance care conversation with your child. Get suggestions on how to facilitate this discussion here: